Proud grandparents! Above is my brother John, his wife Gerry, and little Scott.Sunday, November 30, 2008
Thanksgiving Morning
Proud grandparents! Above is my brother John, his wife Gerry, and little Scott.Kristin and baby Scott



These pictures were from Saturday morning just before Kristin and little Scott flew back home to Kalamazoo.
Update 2.0
Nevertheless Dr. Sanchez will discuss this with the other doctors during their case meeting and if all agree, she could be released as early as Monday.
Update
Yesterday afternoon Ma was brought down to the radiology department where the doctor took a sample of the ascites fluids for a culture. This was done to see if the ascites fluid is the source of the infection. That would be bad.
So far there is no bacterial growth on the culture. This is positive but they will keep an eye on the culture for about the next 30 hours. If there is no growth, this means that the ascites fluids should be ruled out as a source of the infection.
The source of the bacterial blood infection seems to be a medical mystery at this point. They do know, however, the type of bacteria that has infected her blood: E Coli. Since they found this out, the doctors have changed the antibiotic to Ceftriaxone. This is another antibiotic used to treat bacterial infections, including and specifically E Coli bacteria in the blood. It is also administered intravenously.
In other news, Ma's temperature and blood pressure have stabilized. And today, she took a stroll down the hall for the first time since being admitted to the hospital on Thanksgiving day.
Saturday, November 29, 2008
E Coli
They suspect that the bacterial infection occurred during the abdominal tap on Monday, but this is yet to be confirmed as the source of the infection.
Contrary to popular opinion about food or water-bourne E Coli illnesses, the doctor said that in our bodies we have E Coli normally and there are many strains of E Coli. We still know little about this particular type of strain. This morning they took a sample of the ascites fluids in her abdominal cavity in order to identify the strain.
The doctor who stopped by earlier this morning did say that she seems to have bounced back from the initial symptoms (sudden onset fever, chills) and that she is responding to the antibiotics but that she will need to remain under observation for at least a few more days.
Friday, November 28, 2008
Diagnosis
The first night in the hospital Ma was given an antibiotic intravenously and the type of antiobiotic given was meant to fight off a wide range of infections. This was due to the fact that the doctors had not yet identified the type of infection. Once they identified the type as bacterial, the treatment was shifted to a combination imipenem and cilastatin. These are antibiotics administered intravenously and used to treat bacterial infections.
We have no word yet on how long she might be in the hospital. First we will need to hear from the doctor about how the treatment is working. We should find this out sometime on Saturday.
Abbott Northwestern
At about 1:45 p.m. central time on Thursday afternoon, she complained of suddenly feeling "chilled" and went to her room to wrap herself in blankets and take a nap. One hour later Mavis checked in on her and she was shaking uncontrollably and crying. Nothing we did (more blankets, electric heater) seemed to help warm her. We remembered that in case of emergencies, we should call the Mayo oncologist on-call for instructions. We did. Dr. Moynihan was the doctor on-call and called us back within a few minutes. He recommended that we layer her in clothes and wrap her in blankets and get her to the emergency room.
We sped to the nearest hospital, Abbott Northwestern, arriving at the ER at 3:07 p.m. Her temperature on arrival was 102.3 degrees. The ER physician examined her and found her heart sounds normal and chest x-rays showed her lungs to be clear. She was given intravenous fluids to lower her temperature.
She was admitted at 7:30 p.m. Later in her room, a nurse's aide stopped by to take her temperature and her blood pressure. The IV fluids worked to lower her temperaturee to 98.7 but her blood pressure was very low (82 over 47). This caused some alarm with the nurse, who then paged the on-call doctor of internal medicine. Dr. Harmala, who happens to be Suomilinen (small world), told us she has an infection. The source of the infection is unknown, but he speculated that she has pneumonia.
Until they confirm the source, there is no estimate for a release date. So for the time being, if you want to give her a call to wish her well you can reach her directly at 612-863-2301 in room 3030.
Wednesday, November 26, 2008
Monday, November 24, 2008
GMA
Mom and I first learned about the symptoms of ovarian cancer while watching this GMA segment that aired in September 2008. Later in the segment a doctor (at about the 4:00 minute mark) talks about the symptoms of ovarian cancer. While watching, mom and I realized she had every symptom mentioned. The same day we scheduled an appointment for blood tests and an ovarian screen.
It is awareness building by television programs and other organizations profiled on this blog that set in motion the process of correct diagnoses and appropriate medical care for women with ovarian cancer. In hopes that the network will continue with segments aimed at raising awareness of ovarian cancer, I wrote the email below to GMA.
Unfortunately I was limited to 500 characters and could have written so much more.
______________________________
I would like to thank GMA for its programming choices. They may have saved my mom's life, or at least helped to lengthen it.
In Sept. 2008, a physician was on GMA to raise awareness about Ovarian Cancer and its symptoms.
Before this segment aired, my mom suffered for months, not knowing what was wrong, nor did the doctors treating her. Because of the segment, she is now undergoing chemo treatments at the Mayo Clinic.
Thank you GMA for building awareness of Ovarian Cancer.
Staying in Rochester
After the procedure Ma was having severe abdominal pain and this is common and expected after the procedure. She is unable to travel afterward. She is sleeping now and will be for the rest of the night.
We should be driving back to Minneapolis tomorrow.
Third Tap
The first time was October 7th, shortly after she arrived to the Mayo Clinic. At that time 17 liters (4.5 gallons) were removed. Two weeks later on October 20th the second tap was done and 8 liters (2.1 gallons) were removed.
It has been five weeks since her last tap. Today 5.5 liters (1.5 gallons) were removed.
So the time between taps is growing and the amount of ascites fluids being removed is lessening.
Jim and Lisa
This is a picture of my brother Jim and his wife Lisa (for those of you who haven't met them yet) with Ma at the Mayo Clinic. They drove Ma/gramma down to Rochester last week for her chemo treatment. We (me, Mavis, Sylv, Jim, Lisa, Ma) then spent the weekend in Minneapolis visiting, cooking, eating, telling stories, laughing a lot, and watching football!
It was a really nice weekend and I'm happy we all got to spend it together.
Live Blogging from the Mayo Clinic
During the procedure, Ma is awake the entire time, unlike the chemo treatments. We arrived a little early for the 2 p.m. appointment, filled out a couple forms, and shortly afterward the nurses took her into the back where they do the procedure. She went in at 2:04 p.m. central time.
Unfortunately we are not allowed to be with her while all of this is going on. So we will be here in the waiting room until further notice.
Sunday, November 23, 2008
My little "Carry On"
According to airline policy, travelers are allowed two pieces of carry on luggage.And did you know that pets are counted as a carry on?
Here is a picture of my two allowable pieces of carry on luggage - my backpack and Gabbie (my little chihuahua), who is pictured here patiently waiting for the boarding call at National Airport yesterday.
Saturday, November 22, 2008
I won TINA TURNER tickets!

The concert is Monday at the Verizon Center in DC!
I won the tickets with a $5 raffle ticket purchased yesterday at work for the Combined Federal Campaign.
Too bad I can't go.
I held onto the tickets for about a half hour agonizing about how I could possibly pull off going to the concert. Delay my flight to Minnesota until Tuesday? Fly Saturday as planned but come back for the concert? Both options would be crazy not to mention outrageously expensive.
So with the painful realization that my going to this concert was not meant to be, I handed the tickets back over to the raffle organizers so they could draw another winner. But all is not lost. Appreciating my gesture, the raffle organizers decided to come up with a consolation prize for me next week.
I'll let you know what I "win!"
Friday, November 21, 2008
Mayo Appointments
The blood tests came back and all indicators looked good. So the chemo treatments went forward as planned. The taxol is being administered right now and so far so good. After the taxol she has one more (the carboplatin). She should be done at about 6:45 p.m. eastern time and on her way back to the hotel by 7:15 p.m.
At the oncology evaluation, the nurse practitioner reported that the CA 125 marker is down to 125. Originally it was 499. Surgery is off the table for now and the foreseeable future. The plan is to continue with the chemo and re-evaluate every few weeks.
On Monday she has an appointment with the radiology department. Fluid has been building up again in her abdomin. The condition is called ascites and it is caused by the cancer. To remove the fluid they do an abdominal paracentis or "tap." This is a procedure where they insert a needle into the abdominal cavity and withdraw the ascites fluids out through the needle. Taps usually can take up to several hours depending on how much fluid is in the cavity.
Other than that, Sylv said she is in good spirits.
Thursday, November 20, 2008
Anybody have a DVR?
Monday, November 17, 2008
Travel Itinerary
Witness History

Locals, recognizing the opportunity to make a fast buck, have begun renting their homes to visitors determined to witness history. One of the residents in my condo building in fact has jumped on the bandwagon. Their apartment is renting for $3,500 for the week. I repeat: for the WEEK.
While jumping on the bandwagon is very tempting, I believe it's best to play it safe and forego the $3,500. I will instead witness history from my own couch.
UPDATE: This is tempting.
Thursday, November 13, 2008
Wednesday, November 12, 2008
Johanna's Law
You can find more about Johanna's law here.
The press release is from the Minnesota Ovarian Cancer Alliance.
_________________
Press Release
President Bush Signs ‘Johanna’s Law’ to Launch a National Gynecologic Awareness Campaign
President Bush has signed Johanna’s Law, landmark legislation that authorizes the development of a national gynecologic cancer awareness campaign. The federal campaign would educate American women and health professionals about the signs and symptoms of ovarian and other gynecologic cancers.
The President signed the law on January 12. Both houses of Congress unanimously approved Johanna’s Law: the Gynecologic Cancer Education and Awareness Act late last year.
Johanna’s Law authorizes $16.5 million over a three-year period to the U.S. Department of Health and Human Services for the awareness and education campaign. It is named for Johanna Silver Gordon, who died from ovarian cancer in 2000.
“This is an exciting development in our efforts to save women’s lives through earlier detection of ovarian cancer,” said Johanna’s sister, Sheryl Silver, who conceived Johanna’s Law and has worked tirelessly for its passage. “By educating the public about the risk factors and symptoms of gynecologic cancers, Johanna’s Law will help women recognize potentially dangerous symptoms and seek appropriate medical attention sooner.”
MOCA members can be proud of the work that has been done by the network of gynecologic cancer advocates throughout the country.” But our work is not done”, says Kathleen Gavin, MOCA’s Executive Director, “We need to continue to push for Congressional funding to make the provisions in Johanna’s Law come alive. There cannot be a national awareness campaign without the appropriation to fund it.”
Tuesday, November 11, 2008
Flowers
Kitchen Makeover - After Pictures
Curious Cabinets - Before
Mavis had some nice cabinets installed a few years ago but her neighbor who installed the cabinets had a curious approach. At first glance I noticed these boards underneath the cabinets and thought the installer had used them to help with leveling. This is standard procedure. But why, you might ask, didn't the boards come down after the install? Because they were holding the cabinets up!
After further inspection, it turned out that the installer screwed the cabinets to the wall only at the top. He used these boards to secure the bottom. In the event you decide to take on your own kitchen makeover sometime, do not use the curious approach. It is incorrect.
After a run over to Home Depot for supplies - a stud finder and cabinet screws - I secured the cabinets to the studs and then removed these boards underneath. We still have a bit of work to do on the cabinets, including putting beadboard inserts into the cabinet doors. That will be a project for the next trip.
Kitchen Makeover - Before
Monday, November 10, 2008
Know the Symptoms

After the Michigan game this weekend, Mavis and I walked into a bathroom at the Metrodome and saw this poster up on the wall. The organization OvaryAct! is responsible for this ad. A small group of ovarian cancer survivors founded OvaryAct! to fund ovarian cancer research. To learn more about this creative ad campaign and this worthy organization, visit its website here.
Sunday, November 9, 2008
Who Is?
I saw Jim Blanchard at National airport tonight. Does he count? He was standing right next to me at the baggage claim.
Saturday, November 8, 2008
Sunday
Mom is traveling home to Baraga for the first time since the end of September. She is relieved and overjoyed to sleep in her own bed, be in her own home, and see her close friends and family. Mavis is driving her to Wausau, where they will meet up with John and Carl at a restaurant just off the highway. Emily is meeting up with everyone for lunch too. So it will be an exercise in coordinating schedules! Afterwards, they'll go their separate ways: Mavis back to Minneapolis; John, Carl, and Ma back home to Baraga; and Emily a couple miles down the street back to her place. Safe travels for all!
Meanwhile, I will be heading back to DC tomorrow. The flight from Minneapolis to DC is about two hours. We are scheduled to land at National at about 4:30 eastern time. It'll be nice to have a few hours to settle back in before heading back to work on Monday.
Sylvania Superset
Final Score: 29-6

Friday, November 7, 2008
Neutropenia
Home
Neutrophils
The treatment for November 21st is still on schedule. They chose not to set up an alternative appointment next week. The appointment with the NP for the oncology evaluation, also on the 21st, goes on as planned. Any appointments beyond the 21st will be determined at the evaluation.
Thursday, November 6, 2008
A Nice Visit Today
Rochester
Can Ovarian Cancer Be Found Early?
Questions for the Doctor
Add your questions in the comments section or send them via email. I will compile our questions for the next appointment with Dr. Hartmann.
Wednesday, November 5, 2008
A New Era
It was 54 years ago in Brown v. Board of Education the U.S. Supreme Court declared “separate but equal” unlawful and it set a precedent for future cases which desegregated other public facilities. After Rosa Parks was arrested in 1955 for refusing to let a white passenger take her seat on a Montgomery, AL bus, African Americans began a prolonged boycott of the bus company by walking or carpooling for more than a year.
When four African-American college students placed an order at a "whites only" lunch counter in Greensboro, NC, in 1960, they sparked acts of civil disobedience in many other cities. And it was just 45 years ago Dr. Martin Luther King spoke on the steps of the Lincoln Memorial, sharing his dream that his “children will one day live in a nation where they will not be judged by the color of their skin but by the content of their character.”
And now we begin a new era where we entrust our future to a 47-year old African-American man. Our election yesterday is one more milestone in a long struggle for civil rights and it will continue to reverberate for a long time to come, as it should.
Tuesday, November 4, 2008
A Pattern
It seems there is a pattern where one good day, the one after chemo, is followed by several days when she has some difficulty taking in calories, getting up and down the stairs, moving around the house, and staying awake for more than a few hours at a time. There are also temporary and thankfully short-lived bouts of naseau here and there but it has not gotten to the point where she has to take the medication they gave us for that. Overall while I think these days are not good, neither are they bad, but just okay.
Watch On ESPN

Monday, November 3, 2008
Sunroom Makeover!
Arrivals and Departures

November 21st
Sara just emailed and asked about logistics and travel schedules around the November 21st appointment at Mayo. For people planning on traveling here on or around that date I'm putting up this schedule so you can plan accordingly.
Bottom line: the appointments will be an all-day thing and may require an overnight stay at a hotel that night. We discovered a side effect (sudden onset nausea) this past Friday and realized it is not a good idea to travel in the 2-3 hours after the chemo treatment.
November 21st appointments:
- 10:00 a.m. Gonda Building, 10th Floor, Desk 10 East, Blood Tests
- 2:00 p.m. Gonda Building, 10th Floor, Desk 10 South,Division of Medical Oncology, Dolores Nordquist, Nurse Practitioner, Oncology Evaluation
- 2:30 p.m. Gonda Building, 10th Floor, Desk 10 East, Chemotherapy
The blood tests should take less than a half hour so there will be a break until her next appointment with the NP at 2 p.m. If the chemo appointment starts on time (and it should this time) then everything should finish up around 5:30 p.m. After that she needs about 15 minutes to wake up and orient herself. Hopefully a bed will be available. The time to request a bed is during check-in with the 10 East Desk for her 2:30 appointment.
Sunday, November 2, 2008
Jucy or Juicy?
My sister, Mavis, lives in the Powderhorn Park neighborhood in South Minneapolis. A visit to Powderhorn is incomplete without a stop at Matt's Bar, the original home of the "Jucy Lucy." Or is it? Read on to get to the bottom of this raging controversy.But first, what is a Jucy Lucy, you ask? The Jucy Lucy is a south Minneapolis original. In brief, you take a large amount of cheese and sandwich it between two patties of ground beef. After carefully sealing the edges, you grill what basically becomes a big beef/cheese jelly doughnut. Slap it on a bun with some pickles and onions, and you have a cheeseburger better than any in the world, even better than the Five Guys cheeseburgers and that is no exaggeration.
According to Wikipedia, The Jucy Lucy was apparently invented at Matt's Bar, though this is disputed. The 5-8 Club, a short distance south of Matt's, also claims to have invented the cheeseburger and uses the "juicy lucy" spelling. Concerning this spelling, Matt's Bar proudly boasts on posters that "if it's spelled correctly, you're at the wrong place".
Now based on sources close to this blogger and based on my personal experiences, I can report that Matt's Bar is in fact THE home of the original and best Jucy Lucy. So on your next visit be sure to stop by Matt's and order a Jucy Lucy!
Emily and Adam









